Rare Diseases

Uncommon Yet Significant

Rare diseases often remain unnoticed in our daily lives, despite their profound impact on those affected. Due to their low prevalence, these diseases often fail to make headlines in mainstream news, making it challenging to access information about them. However, rare diseases can be devastating and claim numerous lives, underscoring the importance of raising awareness.

Observing Rare Disease Day 2024

Date and Significance

Rare Disease Day is commemorated annually on the last day of February. Typically falling on February 28, this year, Rare Disease Day 2024 holds special significance as it coincides with February 29, owing to it being a leap year. This year, the observance falls on a Thursday, providing an opportunity for global engagement in raising awareness.

Delving into History

Origins and Evolution

In 2008, EURORDIS, in collaboration with the Council of National Alliances, designated February 29 as Rare Disease Day, symbolizing the rarity of the date on the calendar. Initially celebrated in eighteen European countries, Rare Disease Day has since evolved into a global initiative, observed on the last day of February each year.

Advocating for Change

Rare Disease Day serves as a reminder of the challenges faced by individuals living with rare diseases and the importance of solidarity and support. By fostering understanding and compassion, we can strive towards a world where rare diseases are no longer overlooked.